Annals of Indian Academy of Neurology
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Annual cost of care of parkinson's Disease and its determinants in North India – A cost of illness study with patient perspective


1 Department of Neurology, All India Institute of Medical Sciences, New Delhi; Department of Neurology, Apex Hospital, Jaipur, Rajasthan, India
2 Department of Neurology, All India Institute of Medical Sciences, New Delhi; Department of Neurology, Sardar Patel Medical College, Bikaner, Rajasthan, India
3 Department of Neurology, Sardar Patel Medical College, Bikaner, Rajasthan, India
4 Department of Neurology, All India Institute of Medical Sciences, New Delhi, India

Correspondence Address:
Inder Puri,
Sardar Patel Medical College, Bikaner - 334 001, Rajasthan
India
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/aian.aian_779_21

Background: Parkinson's disease (PD) is a slowly progressive and disabling disorder, so the cost of illness may change with time. We aimed this study to know the annual cost of care of PD in India. Methods: After ethics approval, a prospective cohort study was conducted at the movement disorder clinic of tertiary care hospital for 2 years (2014–2016). The outcomes were a description of the total annual direct cost of Parkinson's disease including health care as well as non-health care cost. We also did correlation analysis to know the determinants of the total cost. Results: A total of 200 consecutive patients of PD with 141 (70.50%) males and 59 (29.50%) females with a mean age of 56.84 ± 10.51 years were enrolled. The annual Median Direct cost of care was INR 27,315.0 (IQR 13636.6–44908.4), whereas the Indirect cost was INR 21,400 (IQR 9800 – 96800). Cost on drugs (Direct health care) formed 68.50% (Median) of the total Direct cost. Total direct cost formed 11.38% of the Median total yearly income of our patients. Of the direct cost, the Median expenditure on drugs was INR 18,712.8 (8064.0 -30696.0). Only 5% of patients had health care insurance. The total direct cost was determined by the stage of Parkinson's disease and duration of disease (P = < 0.01) but not predicted by age, gender, age at onset, and the yearly income of patients. Conclusion: Annual cost of care of Parkinson's disease is high and increases with the duration of the disease as well as the progression of the disease.


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